Tag Archives: ot

A Day In The Park

Charlie cut her first tooth last night!

After a crazy night, we visited James River State Park. It was our thirteenth Virginia State Park. Charlie was busy playing most of the morning and early afternoon. Because she and I were alone, I did not get to take many pictures.

These are the pictures that I took…

park6

There was a kids’ exploration area. Charlie practiced her standing (as suggested by the PT yesterday) in the stump garden. She also played with the drums, climbed on the logs, and played in the sand pit that was in the kids’ area.

park5

She had her first fudgesicle and impromptu feeding therapy.

We wrapped things up by playing by the river.

park3 park4 park1


Music Therapy

I’ve previously written a post about how much Charlie loves music therapy. I now have pictures to illustrate exactly what goes on during a therapy session.

944453_10101153012780019_507330382_n 1043958_10101153012710159_1623122242_n969868_10101153013029519_189132957_n 1010185_10101153012879819_49078480_n 1017320_10101153012949679_460818376_n994160_10101153012490599_1291017582_n 1002231_10101153012630319_1377770266_n 1010550_10101153012325929_1737759216_n942061_10101153013139299_954461284_n 1044286_10101153013214149_508610643_n


Moving Forward In Feeding

Charlie seems to know when I’m starting to feign enthusiasm for her therapy. I think she may strategically choose those moments to master a skill. It is almost like she is saying, “Don’t give up on me!”. Similarly to the day she learned to use her arms, today was one of those days that she unexpectedly moved forward when I greatly needed it.

Because I did not sleep well last night (Charlie was restless and decided she needed a mid night feeding), I have been dragging through my routine today. Halfheartedly, I carried out her lunch time feeding therapy. Afterwards, I fed Charlie her bottle and seated her in her seat. She watched intently as I started to devour my lunch. As I often do when she seems interested in my food, I handed her a sliver of my grilled cheese sandwich. She grabbed it and stared at my blankly. In return, I maintained eye contact with her as I took a bite. I dramatically said, “MMMMMM, that’s so yummy!” as I chewed. She responded with a laugh and smile.

As I turned away, Charlie squealed. I looked and she had taken her piece up to her mouth. She was gumming on it and making her “mmmmm” noise. I cheered. She reveled in my delight. We (her feeding therapist, dad, and I) have been trying to teach her hand to mouth feeding for weeks. I suppose she decided that today was going to be the day. To have proof for her dad, I snapped a picture.

She continued to gum and gnaw at it. After transforming it into a manageable texture, she consumed about a quarter of what I gave her. In addition, I offered her a peach slice off of my plate (which did not turn out so well). She drifted off to sleep shortly afterwards. I found myself rejuvenated by the pleasant surprise.

photo (43)


Sensory Issues And The Beach

While Charlie’s sensory issues have made a vast improvement in the last year, there remains room for improvement. Yesterday was Charlie’s first time playing in the ocean and sand. We went to Kiptopeke State Park on the eastern shore. This is how her initial interaction went:

100_0807 100_0808 100_0809 100_0811 100_0812

She did enjoy things once she realized she could bang shells together.

100_0818


The Difference Early Intervention Makes

Charlie’s first birthday is less than a week away. I wanted to see how far she has progressed and grown during her first year. I looked through the pics and videos that I have posted on Facebook.

Obviously, she has grown quite a bit since the NICU. In addition, Charlie has made amazing progress in a way that may not be obvious to others. Her motor skills have drastically improved.

In a video taken in mid December (she was four months adjusted age), Charlie was unable to use her arms or legs. (I will post the video after writing this.) At that point, Charlie had only begun PT. Clearly, something was not right.

In desperation, I posted on a special needs parents board. I explained my situation and asked the parents what advice they had for me. Early Intervention and seeing a developmental pediatrician were both suggested repeatedly.

I followed the advice. I had to. It is what I needed to do to be OK if she doesn’t catch up. I knew there was a problem. I could not pretend it was not happening. If I ignored it, she would pay the price for the comfort of my own denial.

For six months, she has been in Early Intervention (PT, OT, and Speech/feeding) while being followed by a developmental pediatrician. We still do not know the etiology of her developmental delay. She is still developmentally delayed. However, she is making amazing progress. Yesterday, she commando crawled for the first time.

Early Intervention has made all the difference for Charlie. I am unsure she would have progressed as far with out it.


Weird Baby

I’ve noticed that it is either feast of famine when it comes to progress with Charlie’s therapy. Yesterday, it was feast.

Charlie had a very successful OT and feeding therapy session yesterday. Last session, the therapist and I noticed that she liked licking textured things despite gagging on anything that passes the threshold of her lips into her mouth. This knowledge allowed the OT to come up with ideas as she rummaged through her arsenal of items at home.

The OT brought these items yesterday.

image

image

I presented them to Charlie. I held each item individually in front of her lips. As predicted, she stuck out her tongue and licked those items.

The therapist was a little more adventurous and worked them past Charlie’s lips into the very front of her mouth. Charlie grimaced. The stress caused her to tremble. However, she did not gag. I tried with the same result.

I retreated for a moment to give Charlie a second to “reorganize”.

Charlie whimpered.

Could she actually want to try more? I handed her the green item and placed it in front of her mouth. She tried to stick it in her mouth. She grimaced and pulled it out quickly. The odd thing is that she tried it again. She tried a number of times. Each time she would grimace and sometimes she would gag. But, she kept trying.

The OT and I looked at each other. I think we were both wondering what this baby was thinking. I laughed and said, “This is one weird baby.”

After the session, Charlie and I worked with the pacifier looking tool after each time Charlie ate. By evening, Charlie was able to hold it in her mouth for a few seconds.

This is a very big deal. It is one more step towards Charlie actually being able to feast.


%d bloggers like this: