Special Needs Parenting Merit Badges

Today, I modified Charlie’s stroller for tomorrow’s outing. (I’m still waiting on coverage for an adaptive stroller.) When I had finished the upgrade, I was pleased with myself and thought, “I’m getting pretty good at this.” I was reminded of another blogger’s post written about Motherhood Merit Badges. I think there needs to be Special Needs Parenting Merit Badges. This is what I would include:

MacGyver Badge: For the parent that can, at a moment’s notice, fashion adaptive equipment out of items on hand. Be it feeding equipment, mobility devices, or anything else normally special ordered… If it’s not readily available, this parent can make a working version for temporary use.

NICU/ Hospital Expert: This is the parent that knows the best places to eat, quietest hospital lounges, quickest way to the NICU/pediatrics from the parking garage, alternate hallways in the hospital to avoid crowds, available resources, every hospital and NICU policy, the names of every other long term NICU/peds parent, the on call rotation, and best times to visit. This parent is usually more helpful than the hospital staff.

Automatic Denial Victor: This badge is earned the first time a parent successfully appeals an automatic denial.

Red Tape Guru: Parents who earn this badge have successfully applied for durable medical equipment coverage, insurance reimbursement, Medicaid waivers, and/or other state and federal programs.

Office Staff Diplomat: This badge is earned after repeatedly dealing with incompetent medical office staff and yet remaining cool. These parents are masters at getting what their kids need despite confrontation with ungracious office staff.

Honorary Nursing: Parents who learn what are otherwise considered nursing skills earn this badge. Feeding tube maintenance, injections, and airway maintenance are a few of the skills encompassed by this badge. Included in the badge is all the jargon, esoteric language, and knowledge a parent has to learn about their kid’s medical condition.

Impromptu Therapist: This parent is always inventing ways to incorporate every day activities into speech therapy, OT, or PT.

IEP/IFSP Whiz: No obstacle, school system, or official stands in this parent’s way. They know how to quickly and easily obtain appropriate accommodations  at IEP/IFSP meetings without breaking a sweat.

Which badges would you earn? What badges would you add?

 

special needs bingo

I’ve also made a bingo game of the above badges.

Advertisements

About Rebecca Wood

In May 2012, my pregnancy ended three and a half months early due to severe early onset preeclampsia. This is my collection of thoughts and media. It is an attempt to document and discuss our experience of navigating the post NICU world. View all posts by Rebecca Wood

8 responses to “Special Needs Parenting Merit Badges

  • staciet

    Lol, awesome badge names!

    Don’t forget “Schedule Master” – able to organize and juggle multiple appointments, even those made for months in advance. Can fit doctor and therapy appointments into an already tight schedule, usually while uttering the words, “We’ll make it happen.”

    “Feeding Guru” – knows and employs a wide variety of nutritional tricks to maximize caloric counts for those who are not always the most energetic eaters.

    Like

  • steevbeed

    We have the MacGyver plus badge for ‘babyproofing’ the house against a 5 foot 7,14 year old. The Samuel Johnson badge for deciphering unintelligible professional reports and the Turing badge for reading hand written notes from school.
    Like this post, keep on keeping on. Hope the buggy adaption works, sometimes we found our own adaptions were better than the manufactured ones we eventually got as we had designed them specifically for us.
    If you are looking for a long term buggy that is very adaptable and versatile, but still a buggy (not a wheelchair) you could try Convaid, we are on our fourth size up and my son loves them.

    Like

  • Liana S

    I’d have a few badges myself…
    BINGO!

    Like

  • LindaGHill

    Excellent! The only one I haven’t needed is the Red Tape – I’m in Canada. How about the one where the doctor knows you and your kid so well that they ask YOU what’s wrong instead of telling you? 😀

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: