This opinion piece appeared in the New York Times this week. It is an important topic for those with babies in the NICU.
Let me start by stating that if I could go back in time with present knowledge, I would not change a thing.
However, when Charlie was in the NICU, I would have liked to been informed of more than merely the mortality statistics. It would have helped to know the possible issues my baby would face and not all preemies catch up by two.
I feel that I could have been better prepared. It would have spared me of crushed expectations. Prior to Charlie’s first year home, I thought all preemies catch up by two. I anticipated a “normal” baby experience upon Charlie’s homecoming. After so much heartbreak and loss, NICU parents deserve more information and discussion.
NICU moms, what do you think about the piece?
Charlie enjoyed the lovely weather today at the state arboretum.